Jen (![[info]](http://l-stat.livejournal.com/img/userinfo.gif){kind=small} jensternal) wrote,@ 2008-05-18 21:03:00 |
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Migraine people, help
xposted to the migraines comm.
So, I'm pretty sure I'm in a rebound cycle. I was doing so well before I got my last set of botox shots 2 months ago--down to maybe 1 mild migraine over 2 or 3 days. Then I got a new kind of botox, the Myobloc, and ever since then I've been miserable. Here's the relevant points:
-migraines daily for almost 4 years now
-seeing a neurospecialist at the cleveland clinic
-trying to get pregnant, so off all my preventatives(was on 4, plus fentanyl patches)
-taking midrin and morphine every day for the pain
I talked to my neuro's NP last week, and they put me on a 10 day burst of Depakote. They want to pull me into clinic for a 3-5 day IV treatment, but I just started a new job and can't take the time off. I'm a nurse, and I asked if I could do the treatment at home(I have a mediport for IVs, so it would be fairly easy), but the NP said no. The NP also said(well, insinuated) that I'm probably in a rebound cycle and I'm sure this is probably true, since the migraines come on at the same time every day and I feel so much better after the morphine and midrin kick in. The depakote doesn't seem to have helped at all.
Ideas, anyone? I really don't want to go to cleveland for the IV treatment unless I absolutely have to. What do you and your treatment teams do for rebounds?
xposted to the migraines comm.
So, I'm pretty sure I'm in a rebound cycle. I was doing so well before I got my last set of botox shots 2 months ago--down to maybe 1 mild migraine over 2 or 3 days. Then I got a new kind of botox, the Myobloc, and ever since then I've been miserable. Here's the relevant points:
-migraines daily for almost 4 years now
-seeing a neurospecialist at the cleveland clinic
-trying to get pregnant, so off all my preventatives(was on 4, plus fentanyl patches)
-taking midrin and morphine every day for the pain
I talked to my neuro's NP last week, and they put me on a 10 day burst of Depakote. They want to pull me into clinic for a 3-5 day IV treatment, but I just started a new job and can't take the time off. I'm a nurse, and I asked if I could do the treatment at home(I have a mediport for IVs, so it would be fairly easy), but the NP said no. The NP also said(well, insinuated) that I'm probably in a rebound cycle and I'm sure this is probably true, since the migraines come on at the same time every day and I feel so much better after the morphine and midrin kick in. The depakote doesn't seem to have helped at all.
Ideas, anyone? I really don't want to go to cleveland for the IV treatment unless I absolutely have to. What do you and your treatment teams do for rebounds?
