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July 2008
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Jen [userpic]
Migraine people, help

xposted to the migraines comm.
So, I'm pretty sure I'm in a rebound cycle. I was doing so well before I got my last set of botox shots 2 months ago--down to maybe 1 mild migraine over 2 or 3 days. Then I got a new kind of botox, the Myobloc, and ever since then I've been miserable. Here's the relevant points:
-migraines daily for almost 4 years now
-seeing a neurospecialist at the cleveland clinic
-trying to get pregnant, so off all my preventatives(was on 4, plus fentanyl patches)
-taking midrin and morphine every day for the pain

I talked to my neuro's NP last week, and they put me on a 10 day burst of Depakote. They want to pull me into clinic for a 3-5 day IV treatment, but I just started a new job and can't take the time off. I'm a nurse, and I asked if I could do the treatment at home(I have a mediport for IVs, so it would be fairly easy), but the NP said no. The NP also said(well, insinuated) that I'm probably in a rebound cycle and I'm sure this is probably true, since the migraines come on at the same time every day and I feel so much better after the morphine and midrin kick in. The depakote doesn't seem to have helped at all.
Ideas, anyone? I really don't want to go to cleveland for the IV treatment unless I absolutely have to. What do you and your treatment teams do for rebounds?


eek Jen I always feel so bad for you when I hear about your migraines! I really hope that at some point they subside.

I wonder... being pregnant/giving birth triggers so many hormones, etc. Wouldn't it be fabulous if it could somehow cure you while bringing a bundle of joy into the world? So far I have heard anecdotes of pregnancy making straight hair curly and "curing" (or causing?) endometriosis. Anything's possible right?

Yeah, we're hoping that will be the case. My aunt has migraines as bad as mine are, and every time she was pregnant they went away (and, of course, came back the day after she gave birth, but...). So there's some hope--if I can even get pregnant! It's been 18 months that we've been trying, so it's not looking good.
Thanks for the support.

I'm not sure that I can give any helpful advice here since I've only had a handful of migranes in my life & they were treated with a bottle of advil & a dark quiet room.

I do hope that they figure this out & you feel better soon though :)